Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2021 Apr 1;209(4):265-269.
doi: 10.1097/NMD.0000000000001303.

Patient Access to Mental Health Notes: Motivating Evidence-Informed Ethical Guidelines

Affiliations

Patient Access to Mental Health Notes: Motivating Evidence-Informed Ethical Guidelines

Charlotte R Blease et al. J Nerv Ment Dis. .

Abstract

In the last decade, many health organizations have embarked on a revolution in clinical communication. Using electronic devices, patients can now gain rapid access to their online clinical records. Legally, patients in many countries already have the right to obtain copies of their health records; however, the practice known as "open notes" is different. Via secure online health portals, patients are now able to access their test results, lists of medications, and the very words that clinicians write about them. Open notes are growing with most patients in the Nordic countries already offered access to their full electronic record. From April 2021, a new federal ruling in the United States mandates-with few exemptions-that providers offer patients access to their online notes (Office of the National Coordinator for Health Information Technology, Department of Health and Human Services, Available at: https://www.govinfo.gov/content/pkg/FR-2019-03-04/pdf/2019-02224.pdf#page=99). Against these policy changes, only limited attention has been paid to the ethical question about whether patients with mental health conditions should access their notes, as mentioned in the articles by Strudwick, Yeung, and Gratzer (Front Psychiatry 10:917, 2019) and Blease, O'Neill, Walker, Hägglund, and Torous (Lancet Psychiatry 7:924-925, 2020). In this article, our goal is to motivate further inquiry into opening mental health notes to patients, particularly among persons with serious mental illness and those accessing psychological treatments. Using biomedical ethical principles to frame our discussion, we identify key empirical questions that must be pursued to inform ethical practice guidelines.

PubMed Disclaimer

References

    1. Beauchamp TL, Childress JF (2001) Principles of biomedical ethics . New York: Oxford University Press.
    1. Bell SK, Delbanco T, Elmore JG, Fitzgerald PS, Fossa A, Harcourt K, Leveille SG, Payne TH, Stametz RA, Walker J, DesRoches CM (2020) Frequency and types of patient-reported errors in electronic health record ambulatory care notes. JAMA Netw Open . 3:e205867.
    1. Blease C (2020) Are mental health patients entitled to see their medical notes? Psyche . Available at: https://psyche.co/ideas/are-mental-health-patients-entitled-to-see-their... . Accessed August 26, 2020.
    1. Blease C, Walker J, DesRoches CM, Delbanco T (2021) New U.S. law mandates access to clinical notes: Implications for patients and clinicians. Ann Intern Med . 174:101–102.
    1. Blease CR, Bell SK (2019) Patients as diagnostic collaborators: Sharing visit notes to promote accuracy and safety. Diagnosis (Berl) . 6:213–221.

LinkOut - more resources